Friday, April 23, 2010

Friday, April 23, 2010

Last night was a tough night for Joe. About 3 hours after the radiation treatment(around 7 p.m.) he started vomiting. We had given him medication for nausea but he wasn't able to hold down the second dose. He vomited 3 or 4 times from about 7 - 10 p.m. and then I was able to give him more medicine which seemed to help. His sleep was very restless throughout the night. He complained for a few hours of his leg hurting and thrashed around in bed. I think I must have rubbed his calf muscle for almost two hours until he was able to fall asleep. Today the doctor and nurses thought the muscle complaints were possibly due to an imbalance in his electrolytes from the vomiting and/or cramping related to being strapped to the radiation table for an hour yesterday afternoon. This morning he awoke early and vomited again around 7 am and had some diarrhea. I was able to give him more medicine that seemed to help the vomiting. We are now shortening the period between anti-nausea doses and I think it is working out better. We had to carry Joe to the car this morning as he felt weak, tired and nauseous. We took him in a wheel chair from the car to the radiation appointment at 9:15 today and the process went much faster than yesterday. Since everything is pretty much set up and planned for his treatment, it only lasted about 15 minutes today. I am grateful because I really do not enjoy Joe being in the radiation room knowing dangerous rays are passing through his little body. I used this time to pray hard for the rays to go only where they are supposed to go to kill the bad cells and not to damage his healthy organs. One more week (5 more sessions) and the radiation will be over. He was a very good patient and very polite to all the nurses, technicians and doctors despite not feeling well. He did begin to perk up a little and drink some water as we left so the doctor wasn't worried of him becoming dehydrated. We will watch all of this very closely and give him lots of popsicles, gatorade and whatever else sounds good to him. He has no appetite today but he is drinking slowly so we will work on keeping fluids down first before we work on food. He has been resting more peacefully since this afternoon. We have the weekend off from treatments so I hope he will feel better for a couple of days before we start again next week. Thanks for your prayers for Joe!

3 comments:

Unknown said...

Oh, Lizzy... that is so sad! Let the nausea be gone! Poor Joe! I am so glad he is a trooper, and that you guys are able to give him 100% of your attention. Praying, praying, praying!

Becky said...

Liz -

So sorry to hear about the rough night!! Hopefully Joe's body will begin to adapt to the treatments. I can't imagine what you are feeling, what you are thinking...

Joe is an incredible kid and it is so evident from your blog how much he is loved. Stay strong and keep plugging along. You guys are constantly in our prayers and thoughts.

Mike and Becky Dean

Emily said...

I found your blog through a friend’s Facebook page. I don’t know if you remember us but we were in the surgery waiting room at Cook’s the same time that your family was. We are praying for your little Joe and for your sweet family and are grateful to have found your blog so that we can follow your progress.

Be strong, the first week of radiation in combination with the chemo can be very hard. Our Payton got very sick that week, but it did get better. We will be praying extra hard for your family this week. I can totally relate to your feelings that you were expressing in regards to the radiation. I felt the same way and it was one of the hardest things that I have ever had to go through. Only if you have been through it would you know. I can also relate to feeling numb and completely overwhelmed because it is a lot to take in. Stay positive and know that this time will pass. I remember thinking to myself, will we ever see the day when our little guy will recover and resume a normal life? It will come. I don’t understand why some little kids have to go through such ordeals as this, but I really think that it is because they are so special. Going through this can strengthen your family if you don’t let it overwhelm you. Rely on friends and family and let them help you and don’t be afraid to take time for yourself. If I could give you any advice, I would recommend you keep a journal and take many pictures since this is a time in your life that you will always look back on. I wish that I would have written more about my feelings and our experiences. Stay positive and know you can do this; take it one day at a time. Please let us know if you need anything and don’t be afraid to call us if you have any questions regarding treatment, etc. Sending our Love, Emily and Chad